Performance Anxiety and PROMs
On February 25th, members from the VALHUE study team attended the 26th annual CHSPR health policy conference titled “Performance Anxiety”, in Vancouver, BC. The conference featured discussions about the current state of affairs of performance measurement in Canada and its impact on healthcare system change. Included in that was the role patients play in engaging in research through the use of patient reported outcome measures (PROMs) and patient reported experience measures (PREMs). Read more
Collecting patient reported outcomes in the digital age
Collection of patient reported outcomes typically occur in three ways: interviews, self-administration or a combination of both (Desphande et al., 2011). As the general population becomes ever more tech-savvy, researchers are moving towards electronic administration of PROs to collect patient outcomes data. The use of electronic PROs can be more beneficial than paper based PROs as they reduce data entry errors, allow for notifications to be sent to the patient and may be viewed as more convenient than other methods, thus increasing the likelihood of patient participation. Read more
Sharing our Canadian experience with PROMs at the 2013 National PROMs Summit in London, England
The Second National PROMs Summit focusing on the Development of PROMs in Clinical Practice at a Local Level was held on November 14th, 2013 in London, England. The conference was attended by Angie Chan, Project Manager, on behalf of the VALHUE study team, whose presentation garnered interest among the mostly UK-based attendees. Read more
Measuring health related quality of life
Measuring the health-related quality-of-life (HRQoL) of a population is a concept that has been around since the late 1940s. This is when the World Health Organization proposed that health be measured, not simply by the absence of disease, but by the quality of one’s life. This is great in theory, but the reality is that quality-of-life can be a difficult thing to quantify. How do we measure gains or losses in HRQoL? Read more