Measuring the Patient’s View of the Queue: Challenges and Strategies for Collecting Patient Reported Outcomes Data for Waitlisted Surgical Patients
Vancouver Coastal Health, in collaboration with the University of British Columbia, is collecting Patient Reported Outcomes (PROs) to quantify the effects of waiting for surgical care. General and condition-specific health status, pain, and depression are being measured at three points during the patient’s episode of care: 1) upon registration to a surgical wait list, 2) prior to surgery, and 3) post-recovery. These repeated measurements allow us to evaluate the impact of wait time on the patient’s health while they wait for surgery and after treatment. Read more
Learn more about PROMs
The VALHUE study team will be showing off our research at the Canadian Association for Health Services and Policy Research‘s (CAHSPR) annual conference in Vancouver on May 28 – 31, 2013. Our poster presentation is about selecting a generic health status instrument for the systematic collection of patient-reported outcomes and our oral presentation will focus on lessons from the collection of patient-reported outcomes and knowledge translation exercises. Read more
Measuring health related quality of life
Measuring the health-related quality-of-life (HRQoL) of a population is a concept that has been around since the late 1940s. This is when the World Health Organization proposed that health be measured, not simply by the absence of disease, but by the quality of one’s life. This is great in theory, but the reality is that quality-of-life can be a difficult thing to quantify. How do we measure gains or losses in HRQoL? Read more
Welcome to the PROMs Community
Patient-centred care seems like such a hot topic right now. There is an enormous effort right now to quantify health care from the patient’s point of view. One thing that’s become clear is the growing need for reliable, high quality information. By this I mean information beyond the conceptual, the theoretical, and the buzzwords. The kind of information you can really only get from the firsthand experiences of those that are on the frontline putting this into practice. That’s the kind of experience we hope to deliver with this blog. Welcome to the Patient Reported Outcomes blog. Read more