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Patient-Reported Outcomes
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    See list of other useful websites about PROs, PROMs, and more.

  • Who is using PROMs?

    Get more information about PROMs projects in Canada and internationally.

  • What are PROMs?

    Learn about Patient Reported Outcome Measures (PROMs).

Understanding Patient-Reported Outcomes

Understanding patients’ views and experiences is essential to learning whether healthcare services and policies are meeting the needs of patients and what steps should be taken to improve the system. Patient-reported outcomes (PROs) seek to capture patients’ views about their own health and the health services that they receive.

Patient-reported outcomes are often collected in the form of standardized questionnaires, or patient-reported outcome measures (PROMs). Unlike clinical and physiological outcomes, PROMs can directly understand how health conditions or interventions affect patients’ quality of life.

Evidence and Perspectives on collecting Patient-Reported Outcomes


News

Patient Reported Outcomes: A Primer on the Conceptual Frameworks

December 5, 2018

Clinicians often refer to patient reported outcomes (PROs) as patient surveys, quality of life measures, questionnaires, or waiting room activities. But the formal definition comes from the Food and Drug Administration (FDA) in the United States, which defines PROs as:   “…any report of the status of a patient’s health condition that comes directly from the […]

New in PROs

July 21, 2017

New articles continue to add perspectives and ideas about patient-reported outcomes (PROs). Here is some recent literature for those looking to better understand PROs and their effects on the healthcare system and clinical care.

Black N, Burke L, Forrest CB, Sieberer UR, Ahmed S, Valderas JM, Bartlett SJ, Alonso J. Patient-reported outcomes: pathways to better health, better services, and better societies. Quality of life research. 2016 May 1;25(5):1103-12.

Basch E. Patient-Reported Outcomes—Harnessing Patients’ Voices to Improve Clinical Care. New England Journal of Medicine. 2017 Jan 12;376(2):105-8.

Summary of the 22nd Annual ISOQOL Conference

October 29, 2015

The 22nd annual conference for the International Society of Quality of Life Research (ISOQOL) was recently held in our backyard – right here in Vancouver. The theme of this year’s conference was “The Matrix: Quality of Life in Social Context”. Read more

Guest Post: Selecting a PRO instrument for use at the point-of-care: the experience of the Alberta Ocular Brachytherapy Program

August 28, 2015

Patient-reported outcomes (PROs) were originally developed for clinical trials, where they were incorporated into regular data collection along with biospecimen sampling, testing, or other measures. As a result, PRO instruments could afford to be lengthy – many questions could be asked to capture the fine nuances of symptom severity and functional status. Read more

Guest Post: Patients with chronic OAB – how much do they know about their condition?

July 31, 2015

From a healthcare systems perspective, chronic conditions represent some of the most challenging healthcare needs to address. Studies in both the United States and Canada consistently demonstrate that these conditions are amongst those with the widest variations in their utilization of resources… Read more

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