See our list of other useful websites about PROs and more…

MAPI Research Trust
A non-profit organization facilitating access to information in the fields of Patient-Reported Outcomes (PRO) and Epidemiology, promoting the use of scientific approaches in these fields. The site maintains three unique databases to help with exchanging the latest health outcomes information.

The Patient Outcomes Blog
Updated by DHP Research, which provides consultancy and support in the development and implementation of patient reported outcome measures (PROMs) and patient experience (PREMs) to the pharmaceutical industry and the UK NHS.The blog provides health researchers, clinical trials specialists and healthcare providers with useful information, insights and inspiration in carrying out high quality health-related research.

The King’s Fund
An independent charity working to improve health and health care in England. The group helps to shape policy and practice through research and analysis; develop individuals, teams and organisations; promote understanding of the health and social care system; and bring people together to learn, share knowledge and debate.

NHS Digital, previously UK National Health Service Health and Social Care Information Centre
The national source of health and social care information in the UK. They collect data from a range of health and care organisations, analyse it and publish it in a range of easily accessible formats to help commissioners make better decisions about care and local providers improve their health care services.

Patient Reported Outcomes Measurement Group
Based out of Oxford University, developed as part of the UK National Centre for Health Outcomes Development (NCHOD) this group developed a bibliographic database and houses a number of resources on PROMs and instrument selection.

Canadian Institute for Health Information, Patient Reported Outcome Measures (PROMs) Program
Independent, not-for-profit organization that provides comparable and actionable data and information on Canada’s health system and the health of Canadians. The CIHI PROMs Program aims to provide leadership to advance the standardized approaches to PROMs in Canada.

Patient Reported Outcomes Measurement Information System (PROMIS®) is a set of patient-centered measures which assess how they feel and function.

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