Trafford Crump
Patient Reported Outcomes: A Primer on the Conceptual Frameworks
Clinicians often refer to patient reported outcomes (PROs) as patient surveys, quality of life measures, questionnaires, or waiting room activities. But the formal definition comes from the Food and Drug Administration (FDA) in the United States, which defines PROs as: “…any report of the status of a patient’s health condition that comes directly from the […]
Guest Post: Selecting a PRO instrument for use at the point-of-care: the experience of the Alberta Ocular Brachytherapy Program
Patient-reported outcomes (PROs) were originally developed for clinical trials, where they were incorporated into regular data collection along with biospecimen sampling, testing, or other measures. As a result, PRO instruments could afford to be lengthy – many questions could be asked to capture the fine nuances of symptom severity and functional status. Read more
Guest Post: Patients with chronic OAB – how much do they know about their condition?
From a healthcare systems perspective, chronic conditions represent some of the most challenging healthcare needs to address. Studies in both the United States and Canada consistently demonstrate that these conditions are amongst those with the widest variations in their utilization of resources… Read more
Guest Post: Using mHealth to collect patient reported outcomes from youths with physical disabilities
Youths with physical disabilities often experience pain (Ehde et al., 2009). This pain can cause considerable disruption in their daily activities such as sleep, appetite, family functions, and peer relationships (Oddson et al., 2006). Clinically managing this pain requires regular surveillance, often based on patient self-reports. Read more